Chronic cerebrospinal venous insufficiency (CCSVI) has been an intense conversation between patients and doctors for over a year. It started with a bang and it doesn’t seem to be easing up any either.
The term CCSVI describes the unblocking of blood that drains from veins to the central nervous system (CNS). Dr. Zamboni was the first to look at those veins of those who have MS, stating that this blockage plays a large role in MS, and since November of 2009, this hypothesis has produced such hope or such skepticism, it remains one of the largest MS motivated controversies still.
A recent Business Wire article brings CCSVI back to the forefront of discussions again, with research from Stanford University, that shows initial findings of the procedure relieving severe fatigue.
They are presenting their findings at the 23rd annual International Symposium on Endovascular Therapy (ISET) that is scheduled on Sunday, January 16th in Miami Beach, Florida.
The study, a year long research of 30 MS patients involving either angioplasty or stenting of the veins, found initial data displaying an intriguing bump in energy. Fatigue is not a rare difficulty in MS patients as it causes the brain and body to work that much harder at even the most simple of tasks and heat only worsens it.
They have found that those who had the most common of MS, what is called relapsing-remitting, are the ones who made the most progress and they plan on continuing this year to follow the data that is recorded.
Dr. Dake, M.D., one of the presenters of the initial findings, says, “If a person has MS and has a blood vessel obstruction, and if it’s removed, we will look at whether we can we demonstrate objectively that there is improvement in blood flow.1“
Caution has been the word of the day regarding media attention2 and many doctors will tell patients expressing interest in the theory either that it is junk science with no proof as of yet and to forget about it, or they will take the calming approach, kindly asking their patients to have a “wait and see attitude”.
Through out this whole uproar, many MS patients find themselves taking their health into their own hands for the first time ever, wanting and needing some kind of action after having been affected with extreme and debilitating problems for many a year.
They are tired of only treating the symptoms, tired of giving themselves shots, tired of all the IV steroids and/or even subjecting themselves to chemotherapy- all in the hopes of slowing down what can be an increasingly weakening journey.